My name is Sharon Friel [Murphy], welcome to my blog.
Did you ever see a person paralyzed in a wheelchair and think to yourself – I’d rather be dead? I did, I’m sure at least once. Life is all about perspective. I now look at people in self propelled wheelchairs and wish I could be like them.
Everybody has a story to tell, here is mine…
In August 2012 my life and my family’s lives changed forever when I was diagnosed with Motor Neurone Disease (MND/ALS). Those three words MND summed up the rest of my life…..this was how my life was going to end; my dreams, plans and future all seemed to evaporate that fateful day.
What started out as a slight limp in my left leg, eight months later turned into a diagnoses of MND. At the time I was 38 years of age, happily married, our beautiful son was only 3 years old and my career had taken off; this was certainly something we never imagined would happen. I had a relatively healthy diet, exercised regularly, my family were all healthy too – where did this come from and why was it happening to me? I will never know the answer to this, nobody does.
For me, MND has been a rapid decline, it forces you to live with the ongoing loss and grief of your old life and former self. Within a year of being diagnosed I was in a wheelchair, no longer able to walk. Four months later, I needed assistance to carry out my daily routine. Another year passed and I lost the ability to speak. Barely able to make a noise, I now depend on technology for a voice.
It’s now Autumn 2017, I can no longer move my arms. I drive my wheelchair with a set of head controls that attach to my head rest. I communicate via my Eye Gaze computer, it’s incredible technology; I speak, text, email and blog through it. It’s my lifeline – life would be hell without it.
Curious about how this life is still worth living? Well, follow my blog and find out.
To find out more about Motor Neurone Disease, click here.
MND is known in America as ALS or Lou Gerhig’s disease.